Going from preschool to kindergarten is a big milestone for kids (and their parents), but for 6-year-old Bryce and his family, this milestone, at one point, felt farther out of reach compared to other children his age.
Before enrolling their son at Easterseals Midwest’s early education center, Bryce, who was diagnosed with Autism Spectrum Disorder in November 2013 when he was 5 years old, had trouble feeding himself so he only ate finger foods. He also had a difficult time communicating, speaking very few words. Now, with Easterseals’ help, Bryce eats with silverware and talks in full sentences.
Because of Bryce’s success at the early education center, his parents, Matt and Amie, decided to enroll their son in a public school in rural Missouri in the fall of 2014; however, Bryce had limited access to many therapeutic resources because of his school’s location.
For example, Matt says his son was seeing a speech therapist, who travelled in from out of town, twice a week...at most.
“At the beginning, we [were concerned] that it would be a situation where we would have to move or try to find transportation for him to go somewhere else,” Matt says. “[The school] had absolutely nothing for him, but they said they were going to try to accommodate Bryce’s needs.”
Ask, and you may receive. Since first meeting with school leadership, the school has hired additional support staff, including a part-time occupational therapist and other paraprofessionals.
Although Matt and Amie are thankful for all of the new resources and services that their son is receiving today, it has been an interesting journey to get to this point. They first started noticing that something was wrong when Bryce was 9 months old.
“We would see other 9-month-old [babies] do certain things, like making certain noises or looking at something when they hear something,” Matt says.
He and his wife made an appointment with Bryce’s pediatrician to discuss having Bryce tested. “We had been wanting [some further testing] for quite some time, but the doctors were quite reluctant to make that decision at such a young age,” Matt says. “They were pretty sure that it was going to be autism, but they wanted to give it a little more time.”
The father of two says he and his wife also turned to other family members for answers. “Both of our parents were saying ‘Oh, some kids just [take a little longer to develop], but everything’s going to be o.k.’,” Matt says. (At the time, the Withers weren’t aware of the Ages and Stages developmental screening, which may have put them on a path to answers even sooner.)
Eventually, the Withers’ instincts were proven right. After several rounds of testing, their doctors diagnosed 5-year-old Bryce with autism. Once they got an official diagnosis, Matt and Amie started to gain a better understanding of their son’s needs, and what he needed to succeed in school.
They worked with his school to create an Individual Education Plan (IEP) for Bryce. An IEP is a customized learning plan within which parents can require that special needs be met, such as allowing your child to sit in a separate room to prevent distractions during tests, requesting the use of color coded notebooks and folders or audio textbooks.
The Withers were familiar with IEP’s because they were a part of Bryce’s curriculum at the early education center. At Bryce’s new school Matt and Amie meet with their son’s teachers and other school staff at least a couple times a year, in addition to standard parent-teacher meetings, to discuss Bryce’s progress and areas that may need improvement.
“It really does help to have things put down on paper,” Matt says. “We know what [school personnel is] doing and they know what we’re doing and what we, [as Bryce’s parents], expect.”
At school, aside from responding to a few triggers such as lighting and loud noises in the classroom, Bryce is a happy 6-year-old student. He loves playing outside, looking at books, coloring, and playing with Play-doh. He enjoys school, and outside of school one of his favorite activities is riding tractors with his dad.
Bryce also likes to visit some of the people who helped him during his first few years, his old teachers and therapists at Easterseals Midwest.
“Before [the early education center], he had no words and almost no communication at all,” Matt says. “And after [the early education center], there was a huge turnaround. Now that he’s in kindergarten, he’s really able to express himself.”
Years ago, doctors told Matt and Amie that Bryce would have several developmental delays, but he continues to beat the odds and reach developmental milestones. Bryce recently wrote the letter “B” on his own for the first time and even colored a picture for his little sister, Jocelynn, and did a great job at coloring inside the lines.
“There’s really no other way to describe it except that we are happy and proud,” Matt says. “We’ve just been so proud in the progress that he’s making, especially since he started kindergarten.”
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