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Aiden and Amanda are twin girls who have Autism Spectrum Disorder (ASD). Throughout their childhood, both girls attended public school. Aiden has graduated from high school and is now enrolled in classes at Ivy Tech Community College; she aspires to work with children and infants. Amanda plans to complete her GED and then further her education in the field of nutrition.
In addition to school, both twins hold jobs: Aiden is a day care helper and Amanda is a Kmart stock clerk. The girls live together (by themselves and in their own home) and share chores, laundry and cooking duties. Currently, the twins receive ongoing support from skills coaches and Amanda is participating in the Supported Employment Program at Easterseals Crossroads. This past year, both Aiden and Amanda were awarded their driver's licenses after completing the Driver's Evaluation and Training program at Easterseals Crossroads. For these sisters, their new-found transportation freedom is an intregal part of their overall path to adult independence.
Thursday, June 27, 2024, 12:03 PM
By Rikki Poynter In 2010, I started a YouTube channel in hopes of finding anything and everything: f…
By Rikki Poynter
In 2010, I started a YouTube channel in hopes of finding anything and everything: friendship, community, career, a life.
I spent my entire life stuck in an abusive home that seemed impossible to get out of after high school because of ableism in society. I started off in the beauty niche until around 2013 when I started to lack inspiration, and it became too expensive to keep up with the newest trends and products on zero income. But what was a girl to do when makeup and YouTube were all that she knew?
I’m deaf and I grew up mainstreamed. I went to public school before and after my diagnosis, had zero access to ASL (American Sign Language) and the deaf community, and zero access to, well, anything and everything, really. There was a deaf school about a half hour or so away from where we lived, and my dad knew about it, but nobody talked to me about it or asked me if I wanted to go. My mother, who became deaf at the age of three due to Rubella (German measles), grew up the same way. I’m pretty sure her upbringing inspired mine. After all, it was all she knew and all my dad knew. And the audiologists never brought up deaf schools or ASL, only spoken language and hearing aids that I guess we couldn’t afford since I never got them growing up.
I was in my early 20s when I wanted to find out more about being deaf and the deaf community. It started with finding deaf makeup artists. From there, it spread to finding deaf people from all around the country on Tumblr. I then moved on to YouTube, where I found mostly deaf people that grew up in deaf families and with ASL. It was nice to see, but I still felt left out because I didn’t have that. I was hoping to also find more people like me.
With a little luck, I decided then that I wanted to make the shift from beauty content to talking about my life growing up as a deaf person who didn’t have ASL or a deaf community. Someone who grew up oral, but wanted to learn ASL. Someone who wanted to find that community. I also talked about accessibility on the Internet, the lack of captions on videos, and how to caption/subtitle videos. When I started to have chronic pain and fatigue, I talked about disability in general. That shift gained some success. I was making connections with other deaf and disabled people online and I was gaining traction on social media, something I was hoping to make some sort of career out of one way or another.
Fast forward to 2015 where I started to include more lifestyle content. Part of that included talking about sexuality: pansexuality, bisexuality, whatever it was at the time. (I use the term bisexuality now, but does it really matter?) I gained a few online LGBTQ+ friends from those videos too.
Things seemed to be going well. We’d engage with each other’s content, send each other messages, and look forward to meeting and seeing each other when events like VidCon and Playlist Live came around.
Rikki at VidCon
At first, socializing at events was great. A bit difficult, but great. Things weren’t perfect as communication sometimes fumbled due to lack of hearing aids and fluency in ASL (both from me and my hearing and non-signing peers), but I felt included. But things started to change as years went by. I began to feel more left out of both the disability and LGBT groups, and the LGBTQ+ groups were already difficult to feel included in because I always felt like I wasn’t “bisexual enough.”
I wasn’t invited to hangouts people had. If people hung out in groups at the afterparty events, I wasn’t invited to be part of the group. It was the same when they went to their hotel rooms to chill out after. Sometimes I’d text about plans and it felt like I was forgotten about because I didn’t receive a text back. Sometimes I did, with a “I’ll let you know!” but after that, nothing.
I know that I can be more difficult to socialize with due to the communication barrier. Deaf people don’t have personal interpreters at the hip, and interpreters typically aren’t hired to be at the afterparties and personal socializing sessions. Having to ask someone to repeat themselves constantly isn’t fun for either party. I fear that people think I think I’m “better” than them because I look like someone who doesn’t want to get involved in conversations and sits in the corner away from everyone else keeping to myself, when the reality is that I just have no idea what’s going on. It’s like Dinner Table Syndrome.
(Dinner Table Syndrome is when you are the only deaf person at the dinner table who signs. Family members and friends have a conversation aloud around the table and everyone but you understands, so you feel left out. This is typically used for the dinner table, especially during the holidays, but we use it for general outings too. I do, anyway.)
With all of that being said about my hearing, non-signing peers, both in the disabled and LGBTQ+ communities and the spaces in general, I often feel out of place in deaf spaces as well. We talk a lot about lateral ableism within our own communities. Sometimes that is the case, and sometimes it’s really just our own lack of confidence. I’m always worried about my ASL skills not being enough, especially as one would think they’d be much better than they were when I first started learning in 2015. But lack of being in a signing environment consistently can have you struggling with ASL fluency. I worry that when I don’t understand something, they’ll be annoyed with me. I worry that when my signing is incomprehensible, they’ll be annoyed with me.
Of course, it isn’t like this all of the time. I am grateful to the people that check in on me and ask me if I’d like to have coffee with them sometime. I’m grateful to my fellow deafies who allowed me to hang out with their group at the zoo this past weekend. I do still feel the most out of place in the LGBTQ+ spaces as it seems to be the hardest to connect to, but I enjoy seeing my peers and their posts on social media. We engage with each other’s queer-related posts from time to time, although it may not be as often as I’d like.
Regardless, I keep trying to find connections with people. If someone has an interest similar to mine, I’m excited to reply. If there’s something they have that I like, I want to compliment them on it. I want there to be a day where I no longer feel lonely and out of place, and I will continue to keep working toward that.
Rikki Poynter is a disabled (deaf, chronic pain and fatigue) accessibility consultant, writer, public speaker, and content creator. Originally a beauty vlogger on YouTube, she moved onto talking about her journey growing up as a mainstreamed deaf person trying to find her deaf identity and community all while trying to navigate an inaccessible world. Since 2013, she has talked about making the Internet accessible to deaf and hard of hearing people with captions, transcripts, and more. Her work has gotten the attention of many news outlets and she has worked with Apple, FireFox, Samsung, Google, and more.
Tuesday, June 25, 2024, 11:11 AM
This blog originally appeared in the NADTC blog. In the quest to increase the number of rides given …
This blog originally appeared in the NADTC blog.
In the quest to increase the number of rides given each month, transportation providers would be remiss if there wasn’t an effort to increase services to family caregivers. The Caregiving in the US 2020 survey showed that 80% of family caregivers provide transportation for their loved ones. With an estimated 53 million family caregivers in the US, that means over 42 million caregivers provide transportation for an older adult or person with a disability. Another eye-opening statistic, according to the same survey, is that only 25% of these caregivers received help with transportation. That is a large group of people who could benefit from transportation services, which means increased rides on your system for people who need them and reduced responsibilities for family caregivers.
Photo credit: Area Agency on Aging of South Central Connecticut, North Haven, CT
Family caregivers are adult children, spouses, siblings, parents and neighbors who help loved ones who are unable to live independently. They help with many things such as housekeeping, preparing meals, paying bills, managing medication and transportation. On average, family caregivers spend over 20 hours/week providing care, leaving limited time to care for themselves. This puts caregivers at a higher risk of health problems, depression and anxiety. High levels of stress can be alleviated for caregivers when they get help with some of their responsibilities. Transportation providers can be part of their support system by making sure rides are accessible to the people they are caring for as well as the caregivers themselves.
To get you pointed in the right direction, here are some things that you should know about family caregivers.
The efforts you take learning about and serving family caregivers can be rewarded by increased rides for those who need them and new partnerships with caregiver support professionals.
Tuesday, June 18, 2024, 12:32 PM
Sarah joined Easterseals MORC’s Dreams Unlimited Clubhouse in 2017 when she was struggling with her …
Sarah, former participant at Easterseals MORC’s Dreams Unlimited Clubhouse
Sarah joined Easterseals MORC’s Dreams Unlimited Clubhouse in 2017 when she was struggling with her mental health, motivation, and socialization. “Dreams Unlimited Clubhouse has helped shape me into the person I have become by giving me different skills and helping me learn how to socialize,” Sarah said. “I have come out of my shell. I’ve learned how to cook. I have learned better communication skills.”
Easterseals MORC’s Dreams Unlimited Clubhouse is a mental health rehabilitation program, overseen and accredited by Clubhouse International, a non-profit organization that helps start and grow Clubhouses globally.
Based in Royal Oak, Michigan, Easterseals MORC’s Dreams Unlimited Clubhouse (DUC) provides individuals with mental illness the social tools and professional skills needed to become more independent. Their approach revolves around a “work-ordered day,” where participants and staff upkeep and run the Clubhouse side-by-side, deciding what needs to be done and what skills participants want to engage in together. Following Clubhouse International’s model of psychosocial rehabilitation, DUC provides a cooperative and nurturing setting where members can progress toward recovery by accessing opportunities for employment, social interaction, education, skill enhancement, housing, and enhanced well-being.
Bridgette, Easterseals MORC’s Dreams Unlimited Clubhouse member
Since the work is self-directed by Clubhouse members, the activities they can do are countless. Some participants learn data processing, cooking, and management, while others engage in banking and planning social events. Social events are important for Clubhouse members as they foster relationship building, improve social skills, and provide meaningful community experiences.
Jacob Warsaw, Clubhouse Generalist, facilitates the work-ordered day, focusing on new members and providing support to anyone who lacks confidence in their tasks. He works with individuals to create a fulfilling work environment that aligns with their personal goals, which boosts self-esteem. Jacob says, “Rooted in the notion that each person has a unique contribution to society, Clubhouses play a significant role in fostering self-assurance and breaking the cycle of social and economic isolation commonly linked with mental illness.”
Members can be placed in paid work when they feel they are ready through the Clubhouse’s Transitional Employment Program. This places them in temporary, entry-level job positions that the Clubhouse has developed in partnership with community employers, rotating members every 6 to 9 months.
Joining the Clubhouse is a straightforward process and ensures the dignity and choice of those who want to join. After touring the building and enrolling, members are introduced to the staff and can choose who to work with, directing their goals and success. “These goals are fluid, evolving, and can be changed or completed at the member’s own pace. With this, members can achieve their goals to no end, get jobs and eventually tone-down their attendance, or stay at a gradual pace. Members do monthly check-ins with their staff to hold themselves accountable to their chosen goals and have added pressure from within to improve,” Jacob adds.
David, an Easterseals MORC’s Dreams Unlimited Clubhouse member
Through engaging with the program, Sarah was able to find steady work and get back into her love of photography. “Because of Easterseals MORC and Dreams Unlimited Clubhouse, I’m learning how to better cope when I’m having a hard time. I now cope by using positive thinking and affirmations. I’ve become more independent, experience more of what life has to offer, and understand my mental health.”
Easterseals MORC’s Dreams Unlimited Clubhouse is always looking to engage new supporters and members of the community. Interested individuals can tour the Clubhouse and sign up to be on the Advisory board to contribute ideas; they can connect employers to DUC to be part of the Transitional Employment Program or sign up to be an expert speaker at a Clubhouse event.
Jacob hopes to expand the conversation around Dreams Unlimited Clubhouse. “We are looking to educate people on Clubhouse and what psychosocial rehabilitation is, as well as increasing the number of people that we serve. We would love to have you here, no matter who you are!”
To learn more about Dreams Unlimited Clubhouse and see how to get involved, visit the Easterseals MORC website. Thank you to Jake Warsaw, Lyndsey Shelby, and Heidi Vanderbeek at Easterseals MORC for their contributions to this blog post.
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Easterseals
141 W
Jackson Blvd, Suite 1400A
Chicago, IL 60604 | 800-221-6827 (toll-free)
Easterseals and its
affiliate organizations
are 501(c)(3) nonprofit organizations.
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