Webinar #1: From Daunting to Doable: The Power of Caregiver Resilience
When you tap into your resilience, the daunting becomes doable. This hour-long webinar—the first in our bimonthly 2014 webinar series—emphasizes understanding the importance of resilience for military caregivers and presents practical ways to build resilience into their lives. Presenter Jane Meier Hamilton, RN, MSN, a nurse for 40 years and family caregiver for 20, is CEO and founder of Partners on the Path, which provides caregiver support programs to businesses and non-profits, healthcare and faith-based organizations. She has facilitated National Veteran Caregiver Training sessions since the program’s inception in 2011. She is also a trainer for the Easterseals Veteran Caregiver Training Program.
"My Plan for Building Resilience" workbook page
More resources and information on caregiver resilience (*PDF)
Transcript for the above webinar, From Daunting to Doable (*PDF)
Slides for the above webinar, From Daunting to Doable (*PDF)
Monday, August 12, 2024, 11:44 AM
Jane, an Easterseals supporter, hadn’t updated her will in 15 years. She told the Easterseals …
Jane, an Easterseals supporter, hadn’t updated her will in 15 years. She told the Easterseals Planned Giving team that her intention was to include a bequest to benefit Easterseals.
As they talked, Jane learned there’s an Easterseals center just two miles from her home. Retired after teaching special education for 35 years, she was looking to volunteer in the community.
Easterseals’ Planned Giving team connected her, and it’s been a perfect fit ever since. “I felt like I was family from the day I walked in the door,” she said.
In the summer, Jane helps with the Easterseals camp program, and during the school year, she volunteers in the early intervention program. “I so believe in early intervention,” she said. “I wish every child in the world had access to it.”
Planning giving involves making charitable donations as part of an individual’s overall financial and estate plan, usually through planned gifts such as bequests in a will, charitable remainder trusts, or charitable gift annuities.
“It feels so good to finally have everything in place,” explains Jane. “Including Easterseals in my plans was the right thing to do. My life is wonderful, and being at Easterseals fills me with joy.”
Some things are difficult to talk about, or even think about. What happens to your estate once you pass on is something many of us want to ignore for as long as possible. But making plans to update your will now can create a legacy, supporting causes or organizations like Easterseals that are important to you. That is what planned giving is all about.
Setting up a will and managing planned giving can sound complicated or overwhelming, but we’ve provided information below to dispel misconceptions and offer definitions to guide your plans.
Estate Plan – Your plan for how and where you want your assets (money, belongings, home, etc.) to be distributed and managed after you’re gone.
Bequest – A bequest is a gift made as part of your estate plan that can be given to a person, trust, or organization. Bequests can be a fixed amount of money or specific property, such as real estate, stocks, bonds, or art. They can be used to support causes (like Easterseals) that are important to you and your family.
Charitable Remainder Trust – A Charitable Remainder Trust or CRT is a gift of cash or other assets that generates income for the donor or other beneficiaries, while the remaining assets are given to charities.
Charitable Gift Annuity – A Charitable Gift Annuity or CGA is a contract between a donor and a charity that provides the donor with a fixed-income stream for life in exchange for a sizeable gift to the charity (minimum $10,000).
Executor – The person named in your will to settle your estate once you’re gone
Trustee – The person named in a trust to manage trust investments for your beneficiaries
Charitable bequest – A charitable gift left by will or living trust
Charitable remainder trust – A trust that gives your chosen beneficiaries income for life or a term of years, with the remaining balance going to charitable organizations you designate, like Easterseals.
Myth: Planned gifts are complicated and confusing.
Truth: There are many types of planned gifts—most are simple and affordable, like a gift in your will or trust. You just need to find the one that best fulfills your goals.
Myth: My estate has to be large to make an impact.
Truth: By including charities like Easterseals in your estate plan for any amount, you make a lasting impact and a tremendous difference. One option is to leave a residual amount.
Myth: I’m too young to think about making a will.
Truth: Planning your estate is an important step at any stage of your life. A simple meeting with an attorney or financial advisor can help you ensure that your intentions are carried out.
Myth: Charitable giving’s main benefit is to reduce your tax burden.
Truth: Different assets can have significantly different tax implications on your estate. Your advisor can be a valuable partner for you in determining your strategy. But, more important, giving can be the start of many good things.
If you would like more information, we invite you to visit the Easterseals Charitable Giving website which provides free resources to plan and create your will.
Thursday, August 1, 2024, 3:31 PM
By Andrea Jennings The Importance of Disability Education Disability education in classrooms is cruc…
By Andrea Jennings
The Importance of Disability Education
Disability education in classrooms is crucial for shaping a more inclusive and understanding society. I am ambulatory and use different mobility aids. However, after sustaining my disability in a motor vehicle accident, as a wheelchair user, and as a parent, I could not even attend my daughter’s open house because of inaccessibility. I have firsthand experience with the barriers and misconceptions surrounding disabilities. Educating students about disabilities can break down these barriers, fostering empathy and acceptance from a young age. Integrating disability education helps create environments where all students feel valued and understood.
In my journey of writing a children’s book and a short script about disability, I’ve discovered that many children hesitate to ask questions about disabilities due to outdated guidance from their parents. This hesitation often stems from a fear of offending or saying the wrong thing. However, open dialogue and education can dispel myths and build a foundation of respect and curiosity. By addressing these fears head-on, educators can create a safe space for students to learn and grow.
Inclusive education is not just about physical accessibility; it’s about changing mindsets and attitudes. By incorporating lessons about disabilities into the curriculum, we can disrupt tropes and stereotypes and advocate for a culture of authentic disability inclusion. This approach benefits all students, as it teaches them to appreciate diversity and develop a deeper understanding of the experiences of others.
Strategies for Integrating Disability Education
Educators need practical strategies and resources to integrate disability education in classrooms successfully. Universal Design for Learning is a great example that emphasizes the need for different modalities for students to process information and demonstrate what they have retained. This approach accommodates various learning styles and abilities, setting students up for success.
One practical strategy is incorporating stories and materials featuring characters with disabilities. Books, films, and guest speakers with lived experiences sharing personal experiences can be powerful tools for sparking discussions and encouraging students to ask questions and share their thoughts. Patricia Herrera, M.S., Regional Manager for the State Council on Developmental Disabilities, emphasizes, “Inclusion that is well done correctly in education is the best route. When teachers are appropriately trained and supported for the curriculum, it makes a difference for everyone.”
Setting teachers up for success by providing training and support is essential. Professional development workshops, access to educational resources, and collaboration with disability advocacy organizations equip teachers with the knowledge and tools to deliver disability education meaningfully and impactfully. Casey Jaguash, Professor of Teacher Education at Pasadena City College, asserts, “Every child has the innate ability to succeed in school. We must recognize and work to dismantle the barriers in the school environment that keep students from thriving; that is how we create safe and equitable spaces for all children to learn, grow, and flourish.”
Disrupting Common Misconceptions: Shifting Paradigms
One of the biggest hurdles in disability education is overcoming common misconceptions and stereotypes. Many people hold outdated beliefs about disabilities, which can lead to prejudice and discrimination. By addressing these misconceptions directly, educators can help students develop a more accurate and respectful understanding of disabilities.
It’s important to dispel the notion that people with disabilities are defined solely by their limitations. Instead, we should emphasize their strengths and talents, recognizing that society and lack of education often present barriers, not disability. Highlighting the achievements of individuals with disabilities in various fields can motivate students and challenge their preconceived notions. Additionally, educators should encourage open discussions about disability and psychologically safe spaces for students. By creating a supportive environment where curiosity is welcomed, we can help students develop a deeper understanding and appreciation of diversity.
Speaking about attitudinal barriers, Kathryn Taylor Smith, an actor, producer, and activist, shared her perspective as a parent of a child with a disability: “Parents think that this is contagious. How about we use this as an opportunity to teach some compassion? Your child can learn as much from my child as my child can learn from yours. It’s the mindset about how teachers treat the children. There should be a way for teachers to be trained for people with language or physical delays.” Kathryn also highlights the need for systemic support, stating, “I give teachers grace and feel that the system should work on integrating with inclusion,” but also notes the red tape parents face in securing necessary services for their children.
Practical Steps for Creating an Inclusive Classroom
Creating a human-centered, inclusive classroom that prioritizes access for all involves thoughtful planning and implementing practical strategies. Classroom layout is a critical first step. Ensure that classrooms, labs, and workspaces are accessible to students using mobility aids. Seating arrangements should provide clear sightlines for all students and accommodate assistive technologies without segregating accessible seating.
Learning design should incorporate multiple instructional methods to cater to various learning styles. Deliver course requirements and assignments clearly and in multiple formats—oral, printed, and electronic. Use a mix of lectures, small group discussions, visual aids, and hands-on activities. Provide a grading rubric in advance and minimize time constraints unless essential to the learning outcome. Announce assignments and due dates well in advance and offer ways for students to demonstrate their knowledge.
Effective communication is vital. Use a microphone to ensure everyone can hear, repeat student questions into the microphone, and practice speaking slowly and clearly. Face students when speaking and provide accessible materials, such as large-font slides, and sufficient time for note-taking. Invite students to discuss accommodations and learning needs, fostering an environment of openness and support. These tools and support were very useful while completing my master’s degree.
Course materials should be accessible to all learners. Provide handouts and textbooks in accessible formats and ensure course websites are fully accessible. Offer transcripts for audio files and accurate captions for videos. Utilize tools like Canvas’s Ally to identify and address accessibility issues in online content.
Speaking with Valerie Stuski, Associate Professor, Design Strategist, and Accessibility and Disability Commissioner, she shared this with me: “All too often, schools are unaware or hesitant to answer simple accessibility questions – is your school accessible? Does your elevator work? Or people can’t find keys to (accessible) back doors or lifts. It’s critical for all faculty and staff to train in accessibility and disability fundamentals. After touring 15 schools, only 2 of those have ever felt welcoming, and it wasn’t because they had all the answers or a brand new facility; it was because they understood inclusion and met us where we were, not where they thought we should be.”
By implementing these strategies, educators can create a classroom environment that supports all students, promotes inclusivity, and fosters a deeper understanding and human-centered approach for all. This approach not only benefits students with disabilities but enriches everyone’s learning experience, paving the way for a more inclusive and equitable society.
Andrea Jennings, M.Mus., Series TV Host for Access for All: Integrating Accessibility is a Disability & Accessibility in Media Strategist, Director, and Actress. Passionate about music, law, and entertainment. Her journey led to creating Shifting Creative Paradigms – Leveling The Playing Field® Multi-Media Social Enterprise Production Co., advocating for social justice through Disability culture, film, music, and art. Her work has graced prestigious platforms like Park Avenue Armory, The Metropolitan Museum of Art, and Rutgers University. Her work is also recognized in Forbes, Billboard Magazine, The Atlantic Magazine, The Hollywood Reporter, and The New York Times.
Thursday, July 25, 2024, 4:57 PM
By Grant Stoner Last month, Easterseals Massachusetts celebrated its annual mentorship retreat for y…
By Grant Stoner
Last month, Easterseals Massachusetts celebrated its annual mentorship retreat for young adults with disabilities. The Empowering You 2024 Mentorship Retreat featured activities and events like workshops emphasizing community building, handcrafted art, games, and several guest speakers. For disabled individuals living in Massachusetts, this annual event encouraged embracing your disabled identity, building support throughout your community, and, more importantly, the capability to confidently and comfortably empower oneself.
Empowering You is the culmination of efforts from Easterseals Massachusetts’ mentorship programs Thrive and Brothers Against Discrimination (B.A.D). While Thrive is specifically for disabled young women, and B.A.D for young men, both groups seek to help disabled members promote and advocate for themselves as confident disabled members of society. I spoke with Easterseals Massachusetts Youth Program Manager, Desi Forte, who explored this year’s mentorship retreat theme and its varying activities, the importance of accommodating numerous disabilities, and her hopes for the future.
What Is Empowering You?
Confidence and self-worth are important tools for any individual. Yet, for disabled people that may struggle to feel welcome in a society that can still pose numerous inaccessible barriers, as well as general notions of ableism, empowerment is crucial for daily living. While Thrive and B.A.D regularly develop programs to create and refine self-help skills, Forte explains it was important to have the annual retreat focus on the overall theme of empowerment.
“The focus of the program was really around empowering people with disabilities by creating these communities,” Forte said. “With the theme of Empowering You, we were trying to find an all-encompassing theme that was broad in terms of scope of what we could cover. Really emphasizing the point around empowerment because that’s what these programs were built to do.”
The annual mentorship retreat took place over a weekend to allow attendees time to engage with activities. Forte notes that the Friday and Saturday were primarily reserved for members of B.A.D, while Thrive members met on Saturday and Sunday, with intentional overlap on Saturday for both groups to connect with one another. Forte explains that approximately 18 attendees within each program stayed for the event, with ages ranging from 15 to adults in their 50s. Yet, despite the vast differences in age, the event provided activities for all to enjoy.
“There were activities around the theme of empowerment,” she said. “There was an art activity where individuals created prints just showing what empowerment means to them. There were speakers around leadership within the disability community and beyond, and how they can be leaders in their lives. There was a lot of structured down-time as a way for these community members to connect with one another to build organic mentoring and empowering relationships from the different generational communities being able to connect with one another.”
Empowering Through Care
Each annual mentorship retreat brings attendees to new locations, and Empowering You was no different. Hosted at Bridgewater State University, members and volunteers were given access to the facilities of the college campus, including residential halls. While this was a great way to directly bring disabled individuals into local communities, it also provided its own logistical challenges.
For many disabled people, traveling, and especially staying overnight, can be a complex process. From transferring medical equipment to extensive care regimes, many disabled individuals do not have the luxury to temporarily bring their care to other areas. Thankfully, Forte notes that the event was able to comfortably and successfully accommodate everyone.
“One of the strongest positive outcomes we always see, is that because this was an overnight event, we were able to support [Personal Care Assistant] needs if that’s something participants need to be involved,” she said. “[We also provide] other needs they may have that may be a barrier for them to participate in other overnight events. Just getting a chance to be overnight, away from their everyday environment, is always a strong part of this program.”
Some attendees, as Forte explains, are experiencing their first overnight event. And for others, these retreats are something to look forward to annually, allowing disabled individuals to connect with peers, as well as comfortably and confidently spend significant time away from their home environment. Forte notes that one of the most common pieces of feedback after each event is the joy with being able to stay overnight. “The feedback that we’ve gotten many, many times, and this year especially, is just being able to be in the space is something that those involved don’t get the opportunity to do very often.”
Moving Forward
Empowering You was not the only event available this year. Forte notes that Easterseals Massachusetts consistently offers numerous events and retreats, both virtually and physically, for disabled attendees and mentors alike. For disabled individuals, these create opportunities to build not only self-confidence, but a sense of community, something crucial for marginalized groups like disabled people. And as each event draws to a close, Forte is hopeful that they will continue with new themes and places.
“The hopes for future events are to just keep them going and to keep them growing,” she said. “To be able to keep doing these and offering these opportunities. The only concerns are always around funding and making sure that that’s available to support these programs, and to support these opportunities.”
Empowering You more than embraced its theme. The intersections of different mentorship groups, community building, and creating necessary tools to empower oneself were felt across the college campus. For disabled individuals, finding a sense of belonging internally, as well as through a community, are crucial components of long-term care. Without community, disabled people may struggle to engage within a traditionally nondisabled society. And while these events continue, self-empowerment and connecting with others will provide even more opportunities for disabled individuals to develop a sense of belonging. And as Forte explains, these retreats and events are integral to the disabled community.
“As a person with a disability myself, I completely understand firsthand what being involved in these programs means,” she said. “And really, what it means for me to be able to give back to this community that means so much to me.”
To learn more about Easterseals Massachusetts, please visit their website.
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Easterseals
141 W
Jackson Blvd, Suite 1400A
Chicago, IL 60604 | 800-221-6827 (toll-free)
Easterseals and its
affiliate organizations
are 501(c)(3) nonprofit organizations.
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