Q&A with "Glen Campbell...I'll Be Me" Director James Keach

By Grant Stoner

Early childhood development is crucial for parents, guardians, and children alike. From providing necessities like food and shelter, to imparting impactful lessons onto children, to ensuring children have quality healthcare, it can be difficult and stressful to consistently and confidently have the resources necessary and readily available. And for parents and guardians of disabled children especially, ensuring your child can have a safe and healthy start to their life can occasionally be a daunting task.

Thankfully, parents and guardians are not alone in their endeavors to care for children. Easterseals Rio Grande Valley offers families, parents, and guardians several resources and tools to help care for children during the early years of their life. Speaking with Easterseals, Executive Director of Easterseals Rio Grande Valley, Pattie Rosenlund, explores the services offered through Early Childhood programs, the importance of supporting children as they grow, and even shares a memorable success story of a client.

What Early Childhood Programs Offer

Caring for a child is often a complex and multifaceted task. Ensuring they have everything they need to successfully and confidently grow into young adults may seem easy on paper, but when factors like costs, available resources, and even disabilities are presented, outside assistance is understandably required. Rosenlund describes Early Childhood services that Easterseals Rio Grande Valley offers, noting that some families may only need one or two, but they have numerous options available.

“We do have an array of programs that really fall under the umbrella of early access and early childhood,” Rosenlund said. “I always consider the heart of our program is our Early Intervention program, the Part C program. In Texas, we do provide, in the natural environment, services. All our staff go into the home or other natural environments like childcare centers. That’s the heart of our programs.”

In Texas, Rosenlund explains that children can be denied Early Childhood Intervention services if the state deems them not eligible. To combat the lack of care when a denial occurs, Easterseals Rio Grande Valley created multiple services that fill the gap for families if needed. For Rosenlund, these programs are crucial to providing families, and more importantly, children, with the care and resources necessary for a healthy life.

“We looked to find other services and found funding through the state of Texas for Home Visiting programs,” Rosenlund said. “We have several model evidence-based programs. One is Parents as Teachers, and that services prenatal to the age of five, or when they start school. What we liked about that is it’s a safety net for [Early Childhood Intervention] if they’re not eligible, but still have concerns. We can use that as a program to continue to monitor [the child’s] development, but it’s also a way to engage families earlier.”

Support Along the Way

Prenatal care is undoubtably important, but a child’s development extends far beyond infancy. Milestones like beginning preschool and kindergarten can be overwhelming, and Rosenlund explains the importance of Easterseals Rio Grande Valley’s educational programs.

“We also have what’s called HIPPY program, it’s another evidence-based program that is Home Instruction for Parents of Preschool Youngsters,” Rosenlund said. “That is a program that families [use to] just really focus on school readiness. Parents as Teachers has more developmental learning in a broader scope. HIPPY is really focusing on school readiness. [HIPPY] serves two-year-olds, because kids are starting school so much earlier, all the way up to age five when they start school.”

Beyond the need to prepare children for school, Easterseals Rio Grande Valley also offers programs for children coming from abusive situations. Rosenlund explains that when a child is placed within Child Protective Services, Easterseals Rio Grande Valley can enter the environment and work with guardians or even parents to ensure the child is still receiving proper life skills and education. Rosenlund notes that the creation of this program is fundamentally different to others because of the nature of the home environment.

“Our Parents as Teachers program, although serves the age range, doesn’t necessarily meet the need, because it’s meeting parents where they are, and it’s much more collaborative,” Rosenlund said. “We needed something much more direct. We started the Safe Care program, and that is another evidence-based program that has three modules and works very direct with the parent on health, safety, and parent-child interaction. With that program, you do a preassessment and you really must demonstrate competency to move out of that unit and complete it.”

Success Stories

The goals of each program within Easterseals Rio Grande Valley are to ultimately ensure a child is set up for success and safety. Whether it’s learning crucial life skills or teaching parents and guardians how to best support their growing child, the resources that Easterseals Rio Grande Valley provides are beneficial beyond the first five years of a child’s life. And for one former client, Rosenlund acknowledges the importance and value of watching these programs succeed, especially at the annual dinner event honoring the community and humanitarians.

“The success really comes in the evening, when Matteo, our [Early Childhood Intervention] graduate came onto the stage to really talk about [the evening’s] experience,” Rosenlund said. “He was in our program only weeks after he was born, and he was born, unbeknownst to his parents, with multiple heart anomalies – over 10 to 15 holes in his heart. His eye hadn’t developed, and he had problems breathing. We were there with him as a baby. He took the stage and very confidently told his story. He wrote a poem about ‘I’m Just a Boy,’ and won the crowd over.”

Easterseals Rio Grande Valley is a shining example of the importance of educating and caring for young children. As they grow and learn crucial life skills, Easterseals Rio Grande Valley is there to aid everyone involved. Ensuring future generations have quality care and tools to aid them in adulthood is something Rosenlund is proud to promote and support.

“I think it’s so important to have these early education programs,” Rosenlund said. “I can say through all our programs, supporting parents, and building on their protective factors, we really want to help them develop their skills. Just to make sure that we’re there in that critical time that’s so important, not only for the child, but for the parent.”

To learn more about Easterseals Rio Grande Valley, visit their website or search for an Easterseals location near you.

By Alicia Krage

I’ve been blind practically from birth. I had vision for a month, so I obviously don’t remember it. So in my mind, while there are likely visual memories stored from my very early days of life, being blind is the only life I’ve known. That being said, I’m very used to advocating for all kinds of things — inclusion and accessibility, mostly.

This might sound a bit negative, but this world was not designed for people with disabilities. If it was, we’d always have audio description, wheelchair accessible entrances, ride-share drivers ready and willing to take passengers and their service animals, etc. But sadly, this is not the case. We have to find resources for audio-described content. We have to report ride-share drivers who won’t accept a guide dog. We have to make companies aware if their apps or websites don’t work with screen-reading software. I’ve gotten pretty used to that, and while it does frustrate me more often than not, it’s also a lesson in how to make others aware. I don’t think it’s always intentional. Not all companies have an accessibility team full of screen-reader users, for example, who know the inner workings of it all and how it should work with navigating apps and websites. So we educate. We inform people what our access needs are. And when we encounter people who may offer to help too much when we’re out and about, we tell them if we need help or not — and if we do, we tell them how to help us.

I don’t mind doing these things, because the only way for people to know how to accommodate us is for us to educate them, and it teaches us to be advocates of the disabled community. I think it also helps others become comfortable asking what we need, or how we do things, or how they can help. In the end, that’s all I want. All I want is for people to ask and educate.

I know that for some, I am the first blind person someone has ever encountered, whether it’s close friends I have now and we were once strangers, or ride-share drivers or even airport staff. It isn’t news to me, and I don’t mind. But sometimes I think that people are so nervous to ask us questions that they’d either rather (1) help in the way they think is appropriate, or (2) assume they know what we need or where we’re going. As frustrating as this can be to navigate, I’m learning that most people do have good intentions.

When I’m out and about in the world, I have a lot of respect for those who are very upfront about the fact that they don’t know how to guide me. It’s the same kind of comfort you get from talking to someone about something difficult and they say, “I don’t know what to say, but I’m listening.” I know that we’re all human, therefore we don’t always have the right answers or take the right actions, but being transparent about that is much appreciated, especially for me. People who just flat out ask, “How do I guide you?” Or, “I’m new to this, what would help you?” goes a long way. This happens to me a lot at Southwest Airlines when navigating airports. Often times, they’re used to assisting disabled passengers, but as we know, “disability” is a broad term and can mean all types of disabilities. They may have more experience with another disability that isn’t blindness. In these cases, I’ve had a lot of airport assistance just ask me how to help, and I think that’s so important for non-disabled people to do. You won’t know our access needs and accommodations if we don’t tell you. And in order for us to tell you, you have to ask. We don’t ever expect you to just know, but we do expect respect.

Unfortunately, this doesn’t always happen, and since relocating from my hometown and transitioning from suburban life to a big city, it sometimes feel like I’ve had to start from scratch. While Houston does seem to have a familiarity with blindness, I encounter people who get flustered and uncertain sometimes. Sometimes it’s as simple as correcting them (“I’ll take your arm,” when they take hold of my wrist to guide me), and other times it’s having to stand my ground a little. I’m working on finding the line between educating others politely and being assertive. Because a lack of knowledge is one thing, but disrespect is another whole other ball game that I feel like maybe I have been tolerating for too long. I think it’s okay to give people the benefit of the doubt sometimes, but not always.

Recently, I was going with a friend to get her nails done. She’s also blind. When we got off the bus and were heading toward the doors, someone approached us and asked if we needed help. My friend replied with a polite “no thank you.” After being asked two more times, there was a bit of a pause before I then heard her tell them that she didn’t need help and to please not touch her. Often times, people will put their hands on our shoulders to steer us, or often grab our arm to turn us in the right direction, even though we said no and even though we aren’t lost. Sometimes this happens without even asking if we need help, and as you can probably imagine, can be pretty startling. But watching her navigate this situation and using an assertive tone but not being overly aggressive made me realize that I have let others take away my autonomy for far too long. People won’t know what I need and what’s okay and what’s not okay unless I tell them. If I tell them that isn’t okay and educate them, this’ll benefit both of us.

I’m learning that maybe that’s how we advocate. Maybe we watch others. Maybe we see the way others conduct themselves and follow in their footsteps. At least, that’s how I want to learn. I want to surround myself with people who are good at educating others on their access needs but also being firm about their boundaries. And you can make this easier by just asking how to help. Ask and educate.

Alicia Krage is a graduate of Northern Illinois University. She relocated to Houston, Texas in early 2023 where she found a great community of people with disabilities. She has a passion for writing, centering her posts on advocacy, inclusivity, and relationships as a totally blind person.

By Leah Smith

‘Tis the season to be jolly, or so the saying goes. But what if you aren’t? While the holidays can offer opportunities to gather with family and loved ones, they can also bring feelings of loneliness and isolation, especially if you’re not able to be with your (chosen) family for any number of reasons. With 11 different holidays packed into the month of December alone, it can often feel as if everyone but you is surrounded by people who love them.

The experience of isolation is something many disabled folx face year-round, but it can feel especially overwhelming during the holidays. The holidays are often framed as a time for family gatherings, socializing, and celebration. There is a societal expectation to be surrounded by loved ones, engaging in festive activities. Depending on one’s disability, physical, emotional, or logistical barriers—such as difficulty attending large gatherings, pain, or the lack of an accessible space—can make this idealized version of the holidays feel out of reach. The pressure to conform to these expectations can intensify feelings of loneliness and exclusion.  

Ableism, stigma, and a lack of accessibility are just a few of the barriers that often pave the way for this sense of loneliness. Ableism, simply put, is the discrimination people with disabilities experience. During the holidays, ableism can take many forms, both overt and subtle, and can amplify feelings of isolation, exclusion, and marginalization for disabled individuals. For those who are neurodivergent, this ableism might be experienced in the pressure to conform to social norms or participate in celebrations. For those who have mental health disabilities, ableism can be in the pressure to be “happy.” And for those with physical disabilities, an inaccessible event space or a lack of accessible bathrooms can send clear messages about whether or not a person belongs at this event. Many holiday gatherings and public events—whether they are family dinners, office parties, or festive celebrations—are not designed with accessibility in mind. However, there are also ways we, as disabled people, can push back against these barriers and challenge the assumptions about ‘disability’ and ‘community’ that often get in our way the most. 

First, if you are reading this article as an ally to the disability community, there are a few things you can do to help us mitigate the isolation we face. Addressing ableism and stigma in yourself and in your community can be one of the most impactful. As Andrew Pulrang so eloquently noted in his article 7 Things Disabled People Have to Think About Every Day, “The goal is to foster practical knowledge of disabled life, so disabled people’s needs might be better anticipated, and so their requests for accommodations are more readily accepted and met, rather than doubted, picked apart, and denied.” 

What is Ableism Anyway?

Talila Lewis’ working definition of ableism is my favorite, as it so nicely illustrates the intersectionality of ableism with other systems of oppression, like racism, sexism, and capitalism. Intersectionality is the idea that one’s identity consists of multiple overlapping categories, such as disability, race, gender, class, and/or sexual orientation. Many people with disabilities are not just disabled but experience other marginalized identities in which their experience is also framed.

Fighting ableism is one big way we can all address isolation in the disability community.  From my perspective, this fight requires a combination of personal reflection, systemic changes, and cultural shifts in attitudes and beliefs. Ableism can manifest in many forms, from individual biases to structural barriers and can all lead to the social isolation of people with disabilities. From decades of experience from disability activists and allies, to effectively challenge ableism, we must approach it from multiple angles. This includes, education, advocacy, allyship, creating more inclusive environments, and ensuring we have disabled voices at every table.  

The Disability Community 

Photo from Disabled and Here, photographed by Chona Kasinger.

As for those reading this in the disability community, you are not the only one feeling alone and isolated. Sometimes loneliness and isolation are referred to as the “invisible enemy,” but, without a doubt, research shows that we’re facing a mental health crisis in our community. In fact, 61% of disabled people say they are experiencing chronic loneliness. Further, 70% of young disabled people (ages 16 to 24) report feeling lonely “always” or “often” (sense.org). However, when in the depths of feeling isolated, I can guarantee that it doesn’t feel like you are actually part of the majority in this experience.

Unfortunately, the health risks of feeling prolonged loneliness and isolation are equivalent to smoking 15 cigarettes a day and can further cause depression, pain, or fatigue (chrt.org). But if you’ve ever experienced being socially isolated, I don’t have to explain these statistics to you. You’ve felt them. It simply feels awful to not feel included in any given community.

So, What Can We Do About It?

It seems to me that while fighting ableism and ensuring spaces are accessible for all of us might be one of the first steps, joining community comes even before that. Joining the larger disability community in the fight against discriminating policies, social norms, and attitudes can be an incredibly powerful experience. Maybe this means following other disabled people on social media, reading a book by a disabled author, or forming friendships with other disabled people in your community. But in whatever capacity makes sense for you, joining other disabled people to break some of the unspoken rules nondisabled people hold for disabled people can be a huge step in resisting the ableism and stigma we experience. I have personally seen people with varying disabilities break these unspoken rules by collectively not worrying about how loud they are being in a public setting, as some members of the group are hard of hearing; or by going out for a drink when some in the group have an intellectual disability (drinking for someone with an intellectual disability is often seen as forbidden, even when they are of age); or when a group of Little People collectively take on someone who has taken their picture without consent. Pushing back against systemic ableism and stigma simply requires us to band together. As a reminder for myself included, community, joy, and rest are all forms of resistance.    

While the holidays can often amplify feelings of isolation for disabled people, they also present an opportunity to reflect on the systemic barriers that contribute to this sense of loneliness and to think about ways we can resist them. Whether through addressing ableism within our own lives, advocating for accessibility, or building more inclusive communities, we can all play a part in fostering a world where disabled individuals are not left at the margins. For those who experience loneliness, remember that you are not alone in this struggle—many of us share these feelings, and together, we can create spaces where joy, connection, and belonging are not reserved for some, but available to all. In the fight against ableism and stigma, community, rest, and collective resistance are not just political acts; they are essential for our well-being and survival. As we move through this season and into 2025, let’s keep in mind that resistance starts with solidarity—and sometimes, the greatest form of resistance is simply choosing to be in community with one another.

Leah Smith is the Associate Director of the National Center for Disability, Equity, and Intersectionality. Leah intentionally uses identity-first language throughout her writing as a way to resist the notion that disability is something negative or should be avoided. By using identity first language, she hopes to convey the idea that disability is an integral and positive part of who she is.