Harrison and Hudson's Journey with Easterseals Washington

Suzannah is the proud mother of Harrison and Hudson, twin boys diagnosed with a rare genetic condition known as Ectrodactyly–ectodermal dysplasia–cleft syndrome (EEC syndrome, the TP63 mutation of EEC). The first four months of their lives were spent in and out of the hospital. “When we were discharged, it felt like the world pulled the rug out from under us, as we were dealing with so many challenges that came with their syndrome and prematurity,” Suzannah shared. 

Hudson is pictured on the left, Harrison is pictured on the right.

Overwhelmed by the complexities of hospitalizations, surgeries, and diagnoses, Suzannah experienced immense emotional and financial strain. She was determined to give everything to her sons, so she left her job and took on the role of a full-time single mother and caregiver. 

At just 18 months old, Harrison and Hudson were diagnosed with autism. Knowing very little about autism, Suzannah was uncertain how to navigate the path ahead. 

As she began to seek support, she was introduced to Easterseals Washington’s Olympic Peninsula Autism Center. To her family, it was a light at the end of the tunnel.  

“The first day of Harrison and Hudson's session had me anxious,” Suzannah shared, “However, I was immediately greeted with reassurance and friendly faces. I met Allison, the Board-Certified Behavioral Analyst (BCBA), before the first session and she was so compassionate. She put all my concerns to rest.” 

After just a few therapy sessions, Hudson began each ABA appointment by running down the hallway toward Allison, leaping into her arms with a big smile. And soon enough, both Harrison and Hudson began forming meaningful connections with the staff members and other children at the clinic. 

When the boys first started ABA therapy, they were non-verbal, and they fixated on certain behavioral patterns that posed risks to their well-being. Soon enough, they developed new skills, discovered talents and interests, and began to articulate their needs. 

Harrison asked his mother to take his picture with him and Pikachu under a sign that resonated with him and he often refers to it. The sign reads, "The things that make me different are the things that make me ME."

Last Halloween was the first year Harrison and Hudson picked out their costumes. Harrison loves music like the Beatles and 80’s pop. He wanted to dress up as Rick Astley. Hudson loves Batman and he was adamant about being the masked marvel.

“Therapy greatly helped my sons’ confidence and social skills, but over the years, their ABA also helped me as a mom,” Suzannah shared.  

ABA therapy has provided Suzannah with a safe and supportive space to address her sons’ maladaptive behavioral patterns and create plans to help them achieve positive outcomes in educational and social settings. 

Harrison pictured walking on the trail without needing to holding hands, which was a huge accomplishment.

Autism often takes parents by surprise when first diagnosed, and the initial stages can feel incredibly overwhelming. Suzannah offered some heartfelt advice for parents facing similar challenges. “ABA therapy can be so helpful for them transitioning into school, learning how to function in a classroom setting, and learning to cope with their fears or anxieties as they build relationships," she shared.  

Reflecting on her journey, Suzannah acknowledged the significant challenges she’s endured but described it as character-building strength training. “Live for those breakthrough moments. Looking at almost ten years by my sons’ sides, I treasure the milestones no matter how small they may be to others. They are massive for our family and we celebrate them. They are massive for your child, and celebrating their victories alongside them helps build up their confidence and allows your child to feel heard and celebrated.” 

Since 1947, Easterseals Washington has been empowering children and adults with disabilities to reach their full potential by elevating mobility, expanding employment opportunities, enriching education, enhancing health, and engaging community.

To support our mission and to help more families like Suzannah's across Washington State, join the Giving Circle, where a monthly contribution can positively impact the futures of children like Harrison and Hudson.

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